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Progressive MS linked to genetic mutation
06/06/2016 at 15:15 • 0 commentsThis is the first time that a form of MS is directly linked to a ganetic mutation. This can pave a way for new treatment options in near future :)
https://www.sciencedaily.com/releases/2016/06/160601132134.htm
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Good news from few days ago...
05/25/2016 at 10:17 • 0 commentsBiogen idec is losing its patents on DMF in Europe so chances are that much cheaper Tecfidera analogue will be available from Netherlands (where all good things happen, if you know what I mean... :) )
Details:
is-biogen-inc-nasdaqbiib-and-forward-pharma-as-nasdaqfwp-dmf-battle-an-opportunity
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Some additional therapy
05/25/2016 at 10:14 • 0 commentsI'm also experimenting with high doses of vitamin D (10.000 iu/day, maximum safe dose for an adult). Vitamin K2 also added as a precaution against calcium metabolic disorders. Some papers suggested that it could repair nerve damage to some extent, plus make MS milder in general. Doing this for 3 months already, so far so good, I can feel some improvement of symptoms that I have as a result of nerve damage originating before start of DMF treatment. Of course, can't tell for sure it this is related to vitamin D or not.
Will publish updates on this. So far, I'm using myself as a lab rat and I discourage people from doing the same unless they are very sure what they're doing.
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Tried to help others in Serbia and around, but...
05/25/2016 at 10:09 • 0 commentsTough luck so far. Making even as simple DIY medication as this one requires some basics:
1) At least some medical knowledge, how immune system works, what are autoimmune diseases, etc...
2) Ability to read and understand some medical papers and clinical study results at least to some extent.
3) Some guts. No doctor to blame. No mum to help. You're on your own.
4) Being honest to yourself. Yes, I'm ill. No it won't go away on its own. Doctors are unable to help me because they're broke (at least in Serbia). I need to fight.
95% of patients can't do these. It drove me to the edge of nervous breakdown back then. Ever since, if I see that one isn't capable of pulling this off, I tell them to go to their doctor and stop bothering me.
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Project created :)
05/25/2016 at 09:57 • 0 commentsSo, here I am... This project is ongoing for 3 years already, so far so good, I'm still alive and kicking, no significant side effects, very strong and physically active and I hope future brings the same.